FAQ | Truveta

What is Truveta and how will it save lives with data?

Leading health providers have united to advance patient care by forming Truveta, a new company with a vision to save lives with data. The Truveta data platform will help deliver personalized medicine, enable health equity, and empower the health community with insights on how to best treat patients.

Why is it important for the health providers to come together?

For years, there has been the belief that health data could dramatically improve health outcomes. Yet, there has not been enough data collected to statistically represent all patients and the right technical capabilities to structure, normalize and de-identify the data to enable insights. With Truveta, we have enough data at scale to dramatically advance innovation in healthcare with collective commitment to partner on ethical innovation. Over time, we believe data can save lives, deliver significant advances in health equity and help advance patient care. Learn more here.

Who are the founders of Truveta?

Truveta was uniquely formed through our founding health provider partners and CEO Terry Myerson.

Who will use Truveta?

Using advanced AI and machine learning, Truveta will deliver tools to physicians, biopharma and families with aggregate analysis of conditions, therapies, and prognosis. Truveta aims to help democratize care and advance health for all through useful and broadly available tools.

Why does the world need Truveta now?

The COVID-19 pandemic has shown us how much the world needs to learn faster, so we can better serve our communities. We want to help researchers find cures faster, empower every clinician to be an expert and help families make the most informed decisions on their care. If the Truveta platform had existed, physicians could have learned so much more from each other:

Which medications are most effective? When should patients be intubated?
Why do African American men have significantly higher mortality rates?
What are the effects of COVID-19 on mental health?
How do we equitably distribute vaccines?

Faster answers to questions could have saved thousands of lives and improved the lives of millions; and researchers could have staffed clinical trials more quickly with statistically representative populations, shaving months from the vaccine approval process.

How can Truveta help advance health equity?

Together with our health provider partners, Truveta shares a common mission and believes nobody should be left behind. We have a unique opportunity to use data to improve the delivery of health care, so it is better, stronger, and more responsive to the needs of everyone – especially the vulnerable and underserved populations. With national data and scalable technology, we can work together to deliver health services to the people who need it most.

When do you plan to launch a product or service?

Truveta is making rapid progress on building the Truveta platform with a team of technical experts with vast expertise in building technical platforms for some of the world’s most successful tech companies. Truveta is simultaneously pursuing the security certifications and privacy audits necessary to ensure trust and confidence in data protection.

How is Truveta governed?

Truveta is health provider created and governed by innovative partners caring for tens of millions of patients and operating thousands of care facilities across 40 states. Truveta will receive ongoing guidance to ensure the company is operating in pursuit of its vision and mission including a Board of Governors, who will provide strategic, scientific, and operational advice on specific areas of expertise including Ethics & Health Equity, Data Integrity, and Clinical Use.

How is Truveta different from other healthcare data organizations?

Truveta is unique in its breadth and depth of partnerships, strength of its dedicated technical team, and united mission to rapidly make progress on its vision.

What type of data will Truveta collect?

Truveta will help save lives with data through the creation of the Truveta platform, which will deliver valuable insights from billions of clinical data points with a single search. The Truveta platform will structure and normalize a wide range of data across structured and unstructured data types to unlock the power of de-identified data across all diagnoses and demographics.

How will Truveta protect privacy of data?

Truveta is deeply committed to patient privacy, cybersecurity, and ethical innovation. All data on the Truveta platform will be de-identified and Truveta is pursuing the most stringent security certifications.

Truveta aspires to exceed state and federal guidelines. Truveta’s security and privacy commitments are a superset of all of their health providers, with the highest commitment to patient privacy. Additionally, Truveta has engaged ethicists to the full extent to ensure compliance with ethical treatment and use of patient data.

How will the data be de-identified?

The Health Insurance Portability and Accountability Act (HIPAA) established a Privacy Rule that governs the use and disclosure of Protected Health Information (PHI), when held by healthcare providers HIPAA outlines specific guidance that can be applied to PHI so the resulting data is de-identified. The “Expert Determination” and “Safe Harbor” methods outlined in the Privacy Rule will be used to de-identify data before it is used on the Truveta platform.

How is Truveta employee access to patient data managed?

Employee access to health data is limited to a small subset of employees and controlled in a highly managed environment. Truveta requires an extensive three-step approval process prior to accessing data, keeping careful record of who has access with stringent requirements for ongoing approvals, and requiring comprehensive privacy and security training prior to accessing data.

What training will the Truveta team undergo before accessing health provider data?

All members of the Truveta team receive extensive privacy, security, and ethics training upon hiring.

Has Truveta received any data from the health providers yet?

We are in the early days of building the Truveta platform. To date, Truveta has received a small set of fully de-identified test records for use in modeling and creating the Truveta platform. No Protected Health Information data has been shared or will be shared from the health providers until security certifications milestones are obtained for the Truveta platform.

When will Truveta begin receiving PHI?

Truveta will not receive any Protected Health Information until specific criteria is met, including completion of a security certification milestones, verified by health provider audit and legal teams and independent external reviews of our implementation of HIPAA's "Expert Determination" process. We expect to achieve these milestones in the coming months.

What security certifications are you pursuing?

Truveta is currently working on achieving external certifications from ISO, SOC2, and HITRUST.

Will Truveta comply with state specific privacy laws?

Yes, Truveta will comply with all state and federal privacy laws.

How do health providers get involved? Can others join?

Truveta welcomes all health providers to participate. While we are starting in the US, we aspire to serve patients globally. We welcome interested parties to reach out to us via info@truveta.com.

Frequently Asked Questions